Honest conversations about Alzheimer's, dementia, and what it really means to care for someone.
I spent ten years as the full-time caregiver for my grandmother Elo through vascular dementia and Alzheimer's — showering her, feeding her spoon by spoon, learning to read pain in a face that could no longer speak. Nobody trained me for it. Nobody saw it. And I'm one of 12 million millennials quietly doing this job right now.
This is where we finally talk about it: the grief that starts before someone dies, the careers put on hold, the fights with the medical system, the guilt — and the unexpected beauty. Conversations with family caregivers, clinicians, researchers, and the organizations trying to fix a system that pretends we don't exist.
Because caregiving isn't glorified babysitting. It's a job. And it's a tough one.
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Becoming my grandmother's Alzheimer's caregiver — the promise, the freeway, and the job nobody trains you for.
Saying no to sedation in dementia care — and the ten years of "no" that came after the one time I said yes.
What caregiver support actually exists — with one of the organizations that shows up for families.